Metro colleague, Dani Jealous\u2019 son has very sadly recently been diagnosed with Batten Disease, a rarely inherited condition that affects the nervous system and is a genetic life-limiting neurodegenerative disease.<\/p>\n\n\n\n
The genes causing Batten were only identified in 1995 and the only current medication is still undergoing NHS evaluation.<\/p>\n\n\n\n
In Dani\u2019s words. \u201cThere is no treatment or cure for Oscar, and we can\u2019t predict what he will need and when he will need it. Every day with him is a gift and we will react to his needs with the support of our family, friends, @BeMoreOscar followers, the NHS and the Batten Disease Family Association.\u201d<\/p>\n\n\n\n
Dani\u2019s Metro workmates are today raising awareness of Batten Disease, to support Dani and her family, by wearing orange and posting updates on social media.<\/p>\n\n\n\n
Dani has set up a Facebook page @BeMoreOscar to share Oscar\u2019s story, talk about this devastating condition and the positive ways that the family are facing, including Oscar\u2019s growing Bucket List.<\/p>\n\n\n\n
Dani\u2019s posts are often difficult to read. But they are also uplifting and heroic and deserve to be shared, to support the whole family.<\/p>\n\n\n\n
Today is International Batten Disease awareness day, So Be Kind, Reach out, Subscribe, Like, Share, Get Involved but most of all #bemoreOscar<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":" Metro colleague, Dani Jealous\u2019 son has very sadly recently been diagnosed with Batten Disease, a rarely inherited condition that affects the nervous system and is a genetic life-limiting neurodegenerative disease. The genes causing Batten were only identified in 1995 and the only current medication is still undergoing NHS evaluation. In Dani\u2019s words. \u201cThere is no […]<\/p>\n","protected":false},"author":3,"featured_media":4430,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57,62],"tags":[],"class_list":["post-4916","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general","category-metro"],"acf":[],"yoast_head":"\n